johns hopkins prostate cancer second opinion

Benign Processes: The neurovascular bundles are intact. The researchers also found that patients who obtained second opinions because they wanted more information, were seeking the best doctor, or had been encouraged to do so by family or friends were more likely to undergo surgery. The results were ambiguous. I was never under the misconception that I'd never have to do something, but I was going to wait until I needed to do something. lesion. So, I believe I made the right choice. PROSTATE PROS Episode 6: Breakthroughs in Radiation PROSTATE ONCOLOGY SPECIALISTS, Like Man, Im Tired (Of Waiting): The How-to Guide for Men with Prostate Cancer PROSTATE ONCOLOGY SPECIALISTS, Considering Prostate Cancer Clinical Trials? Now, I would like to send Radiology for a similar review. In addition to providing a better understanding of your diagnosis, a second opinion can also shed new light on treatment options and give you confidence in how to proceed with your care. Prostate Cancer Grading: Dont Miss: Can Prostate Problems Cause Burning Urination, Why Prostate Cancer Survivor John Shearron Thinks Its Important To Do Your Research | PCRI, Prostate Cancer Pathology in 2021 | Jonathan Epstein, MD | PCRI 2021 Conference, Johns Hopkins Prostate Cancer Second Opinion, treat rare and complex conditions through breakthrough fetal procedures, Function Of The Prostate Gland And Seminal Vesicles, Best Treatment For Intermediate Prostate Cancer, How Old Can You Be To Get Prostate Cancer, New Treatments For Stage 4 Prostate Cancer, Prostate Radiation Treatment Side Effects, Can Prostate Problems Cause Burning Urination, Prostate Cancer Spread To Skull Prognosis, Life Expectancy Stage 4 Prostate Cancer No Treatment, Diagnostic Procedures For Prostate Cancer. Which Patients Report That Their Urologists Advised Them to Forgo Initial Treatment for Prostate Cancer? My profession for forty years was health actuary consultant, so I have a pretty fair understanding of health data, outcomes, and risks. Atrophy * Perineural Invasion also detected We specialize in minimally invasive treatments for prostate cancer such as: We place a high priority on sparing the nerves and tissue around the prostate whenever possible. Anyway, would appreciate knowing how to contact Johns Hopkins. If the problem is unresponsive to other treatments, your doctor may suggest a surgical procedure. * IF ANYONE reading this doesn't believe in the value of MRI first and targeted biopsy next then take note that my systematic biopsy cores showed 0 positive in 8 cores and my MRI guided core samples were 6 for 6 being positive! Of these, 40% obtained second opinions, most commonly because they wanted more information about their cancer (50.8%) and wanted to be seen by the best doctor (46.3%). Learn more: Vaccines, Boosters & Additional Doses | Testing | Patient Care | Visitor Guidelines | Coronavirus. -------------------------------------------------------- This is the most common urinary tract problem in men under 50, and the third most common in men over 65. I could not get a definitive answer from them on how much, how many cells, or any information. restricted diffusion. -------------------------------------------------------- So, Radiation Oncologist prescribed Cialis 5mg, daily. Sometimes, you may find out about treatment options you didnt know were available. Similarly, among those who received definitive treatment, second opinions were not associated with receiving surgery. - Benign prostatic tissue 4: Prostate, right medial base Fear motivates you to want to treat this as soon as possible. It is OK to be overwhelmed with info. Noted that some don't even include on report and should be looked as something to note but not obsess about. Bookshelf In order to give treatment for each patient with utmost security we would like to announce that currently there will be no visitors allowed.Please note that only one attendant per in-patients is permitted. Adenocarcinoma: One core had 5%, one 20%, and one 40%. As a Gleason 3 + 3, with 8 of 12 positive cores all with less than 30% cancer, and bilateral spread, I have determined that I cannot trust a blind biopsy in and of itself. 1. Also, if any of you have a way to get medicare to pay some portion of the cost, please let me know as well. * Prostate size: 3.9 x 2.8 x 3. cm We prioritized treatment as AS, FLA/TULSA (if a lesion ever presented itself), and Proton Beam Radiation. Benign prostatic tissue Stanford Medicine Online Second Opinion Program And by FAA Aeromedical Ruling, I'd need a few post procedure reports before being cleared to fly again.) Value of Second Opinion in Prostate Cancer Uncertain, Says Hopkins Study. I luckily found this webpage and I started reading everything I could get my hands on. I wish the VA would be more informative about this disease they owe it to our veterans. According to the doctor it is around 3 mm. There is no extraprostatic extension. Read books and realize as soon as they are published, they are outdated. John Hopkins Prostate Cancer Second Opinion My only concerned was heavy metal poisoning and didn't know how long AS would be beneficial since I was starting at a young age. In those cases, patients are tremendously grateful for having received the advice and encouragement to get a second opinion, Dr. Matasar adds. 3/3 4K score 19% (high end of intermediate) Surgery took about 3 hrs. Note respondents were able to choose more than one reason. Right mid anterior transition zone (PIRADS 2). All views would be appreciated. I had the slides reviewed at Johns Hopkins and 1 of the HG PIN cores was changed to suspicious for adenocarcinoma while another HG PIN core was changed to benign. During puberty, the body produces semen in a large number of cases, including enlarged prostate. Men have plenty of time to seek multiple opinions and thoroughly research each option before making a decision. * Extracapsular extension: None. P/ 310-827-7707 | F/ 310-574-4002 | MAIL@PROSTATEONCOLOGY.COM. 6. ZERO - The End of Prostate Cancer Support Community. not hear all the viable treatment options or receive the most up to date This fluid causes the prostate to swell and cause a number of bladder-related symptoms. Receiving a second opinion was not associated with perceived quality of prostate cancer care. E. Prostate, left mid, core biopsy: I have completed all that is necessary to enter Johns Hopkins Second opinion and PTEN test program. The total number of cores identified is 3 * Gleason Score: 3+4 (4 of 6 specimens), 14 specimens taken I did ask some questions about the study, if anyone is interested. Is there such a thing as having a team that isnt equipped with the best equipment nor the most experienced radiologists? Anyone else encounter something like this? The total number of cores with carcinoma is 3 I assume it is not free. And 2 cores from left apex of 3+3=6 with 10% involvement. Because physicians may differ in their approach to treating breast cancer, its very important to check with a breast cancer expert to know youre receiving the best treatment for you. My PSA over time has been creeping up over time (1.8 - 5/16, 1.0 8/17, 2.68 8/18, 2.9 12/18, 3.28 2/19, 3.01 8/19, 3.65 2/20, 3.31 6/20, 3.88 12/20) but I was frankly a bit shocked when I received word that I have cancer. Especially opinions other than those of the first Urologist you see. Seminal vesicles are normal. Oncologist. I had the MRI in April 2021 and it showed a PI-RADS 4 lesion. Y'all are in my prayers! With AHN Cancer Institute, you already get a world-class cancer program with leading expertise, care, and outcomes. Last checkup (July 2022) my PSA was .46 and it is currently at .32.I am still eating primarily a plant based diet (only lean meats/cheeses/eggs about 10% of my diet) and maintaining steady weight and I am still quite active physically.As for symptomswith 5mg Daily Cialis the occasional ED symptoms have pretty much gone away. 180 days after treatment PSA was .50. Johns Hopkins Precision Medicine Center of Excellence for Prostate Cancer, Schaufeld Program for Prostate Cancer in Black Men, Read about the latest prostate cancer discoveries by our world-renowned researchers, Learn more about prostate cancer in our health library, Watch: What to expect during your post-surgery hospital stay. There are lots of lessons learned on the forum. Of course, my old school Urologist recommended surgeryHe, of course, knew the best robotic surgeons around.Anyway. I've also read that some study's have shown that intraductal may be resistant to hormonal therapy, radiation and/or chemo. Benign Processes: He has had a nagging "groin injury" for may years (he played pick up basket ball until he got injured) and we are now wondering if this could be the source of that recurring ache. Time moves fast when dealing with cancer, but Doctors dont. I had no idea there were second opinions and I didn't have a clue about Genomic testing, or even genetic testing. Second Opinions in Prostate Cancer - American Council on Science and Health I'm turning 58 in one week. -------------------------------------------------------- Second opinions are more likely to be comprehensive, or inclusive of every possible perspective, when performed in a cancer center with a multidisciplinary team, which usually includes surgeons, oncologists, radiation therapists, and sub-specialist oncologists. Keywords: A man with a father or brother who had prostate cancer is twice as likely to develop the disease. Good Luck and God Bless everyone. I also changed my diet to plant based food, started juicing, and started taking supplements (think Turmeric, Green Tea, etc.). A doctor at MSK can collaborate with another doctor to offer support and help ensure the best outcomes. Benign Processes: The .gov means its official. My plan is to choose quality of treatment over cost of the treatment. BASE DATA: Dont Miss: New Treatments For Stage 4 Prostate Cancer. This puts PCPs in a unique position to impact the treatment decisionif they only refer to urologists and not to radiation oncologists or medical oncologistssurgery is a likely treatment outcome. No extraprostatic extension. My current situation is age 67, no health issues, never had erectile dysfunction or incontinence, 6 tall, 175 lbs, generally fit and active. My most recent biopsy resulted in two cores with Gleason 4+3=7 and one with 3+3=6. Similarly, among those who received definitive treatment, second opinions were not associated with receiving surgery. Second opinions from urologists for prostate cancer: who gets them, why, and their link to treatment . Want confirmation about a diagnosis or treatment. I am 58 and in very good health otherwise. For these reasons and others, it is advantageous to seek more than one opinion about how your cancer can be treated. We specialize in minimally invasive treatments for prostate cancer such as: We place a high priority on sparing the nerves and tissue around the prostate whenever possible. Peripheral Zone: The peripheral zone is of normal homogeneous prolonged T2 and there are no suspicious focal areas of 24.5 BMI The all-inclusive cost for a virtual second opinion for patients in the U.S. is $1,850. My prior Prolaris study (2018) before the FLA was very low risk. The biopsy took 12 cores, two from each lesion area and 8 randomly. - High grade prostatic intraepithelial neoplasia (HGPIN) I didn't study for the test and it's possible some morning activities might have affected my test score :) Details are here: Targeted MR/Fusion biopsy of one 4x8 mm lesion on Right side showed 3+3 in 2 of 5 cores (20% of total volume), and random Right side: 1 core 3+4 (10%, 20% on second opinion from Johns Hopkins) and 1 core 3+3 (10% volume) ; Left Side 1 core 3+3 (10%, no PCa on second opinion from Johns Hopkins). First 6 week PSA is undetectable. ---------------------------------------------------- It's really that simple! I was confident I was making the right decision. A second opinion is a review of the cancer diagnosis and the treatment recommendations of the physician who is treating the cancer by another, independent physician. Some men will have a very enlarged prostate, whereas others will have a mild enlargement. If pain is present, a digital rectal examination will reveal hard areas. Even if someone is being seen at a different academic center, the trials and other treatment options that we offer here may be different. At this point, I am convinced I made the right treatment choiceOHFOR THOSE THAT DON'T KNOW, THE VA HAS MADE REPRODUCTIVE CANCERS A PRESUMPTIVE CONDITION FOR THOSE THAT SERVED IN MOST OF THE WAR ON TERROR LOCATIONS.Good luck fellas and my prayers are with all of you having to contend with this disease. Without the genomic test I have I lesion 3+3=6 and another, 3+4=7, with less than 5% pattern 4, and an MRI that shows no ECE, no other suspicious lesions and questionable cellular EPE based upon disagreement of pathologists. Read Also: Long Term Side Effects Of Brachytherapy For Prostate Cancer. * Seminal vesicle invasion: None. This may cause a conflict of interest between the patient and the HMO, especially if very expensive treatment is only available outside the HMO system. doi: 10.1002/cncr.30412. About 80 percent of prostate cancers are diagnosed at a localized stage, which means that the cancer hasn't spread outside of the prostate. The lesion also shows focal increased permeability. Breast Cancer: When to Get a Second Opinion - WebMD It starts many years ago. Prostatic Adenocarcinoma But, after 4 drinks or if I'm tired/jet lagged I find that sleep is more appealing than sex. Should You Exercise When Youre Expecting? Of course that was before I found this webpage and I really didn't know what 1 core of 18 samples showing 3+4=7 Gleason meant. I was on disability from work the entire time (not that I was disabled, but as a pilot, I couldn't very well work and get treatment at the same time.

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